Chemo Daze

Hats Off To What I Miss Most About Chemo

What I love most about chemo? Quick–before I forget!

A friend just started chemo this week, and it got me remembering all the good times. Good times, seriously?

Seriously. Now that I’m in the throes of pulling myself back together again, I look back on it fondly. Making the mess was way more fun than cleaning it up.

There was fear, don’t get me wrong–insane amounts of it. But that’s why I wrote my muses. Keep the serious stuff for the doctors, and make light of the rest. It turns out we had a blast! We laughed through chemo and felt the love in ways we never dreamed humanly possible.

But now for the breakdown. It’s a toss-up. Kind of like trying to decide which is a better song: “Girls Just Want To Have Fun” by Cyndi Lauper or “What The World Needs Now” by Dionne Warwick. So how about a little of both.

What I Miss Most About Chemo:

The Fun We Had!
  1. NOT HAVING TO ACT MY AGE! I got to go on a journey (in the middle of Covid when no one was going anywhere). There was no telling what would happen–kind of like when we were kids, and we didn’t know what we would be when we grew up. “You don’t know what you don’t know.” (Did I make that saying up, or did someone else? Either way, it deserves to be in quotes). You were supposed to get messy–fall off the wall and break into a thousand pieces. There was an adventure in the chaos, like fingerpainting for the soul.
  2. PLAYING GAMES (every round was like a rush party)!
    • Having themes
    • Making chemo photo boards so everyone could come to the party
    • Wearing funny hats to each chemo session (hence the themes)
  3. NO RULES! I was so happy when my chemo doctor said, “You can eat whatever you want. There are no rules during chemo.” What he should have said was, “Chemo will make the rules for you.” But, playing on his optimism, there were no rules once I lost my left brain functioning skills. Hooray for no planning, no organizing, and no responsibilities!
  4. LOOKING THE PART/WIGGING OUT! Buying so many hats! I didn’t have enough places to go even to wear them all. I purchased two wigs (a serious one and a fun one) and only wore them for my blog. But I loved wigging out so much I might just have to do it again next week!
  5. ACTING THE PART-CHEMO BRAIN! Oh, how I will never tire of chemo brain. The easy excuse for making hilarious stories that were the envy of any sitcom writer. Just today, Alex was helping Mom with her emails, and one said, “Cracking Chemo Brain.” I looked at it and said, “Who wrote that? What a great title.” Ahem, that would be me who wrote it. I guess I’d be wise to re-read everything I wrote.
That love sweet love we shared!
  1. THE LOVE! It’s like I was living on a planet of love–enveloped in a womb of protection. That’s all I felt. It’s all I knew how to say: “I love you more” became my motto. My chemo doctor asked me, while you were living in your right brain, who was doing all the left brain stuff for you? Everybody else. You! That’s Who!!
  2. LOSING MY HAIR! My greatest fear/obsessions turned out to be one of my greatest loves. I got to crack so many jokes because of it. (Or maybe this should go under the fun category). I wore a silk cap to bed and woke up to count how many hairs fell out during the night. I stopped scrubbing my hair entirely. Once a week, I’d dab shampoo on and rush under the water just long enough so nothing more would accidentally fall out. My friend asked me why it was such a big fear. It was a good question that I couldn’t answer, and then I said, “I guess I don’t want people to see me as a cancer patient.”
  3. PEOPLE SAW ME AS A CANCER PATIENT! OMG, people were so incredible to me. Elite status on the airlines’ pales to this. I remember ramming my cart into a lady at Costco, and she turned around and apologized to me! I still love walking into the hospital for my infusions every three weeks, feeling like I own the place. Who knew I’d get such a high when the guards look at me and say, “Oh, you know where you’re going.”
  4. NOT RELYING ON MY INTELLECT! But whatever it is, I call it being “dumbified.” Once I stopped leaning on my intelligence, I was like the wild-eyed two-year-old. I delighted in having ideas for my weekly muse just come to me fully formed without putting any thought into it. (It was quite another thing trying to make sense of the finished product that was in my head). I grew up wanting to be a ventriloquist and ended up becoming the dummy instead. As a writer, I spent my whole life trying to access my right brain. It had been there all along.
  5. FALLING IN LOVE WITH THE NO JUDGMENT ZONE! Let’s face it, we all want to put our best foot forward, but I was too dumb during chemo for a reason. By the time I lost my eyebrows and eyelashes, I didn’t even notice they were missing. I wrote my muses and didn’t care if anyone read them, or if someone unsubscribed from my mailing list, or if I made a fool of myself, or bored people, or said the wrong thing. (Knowing how far I had gone into this territory, I did have Skylar become my editor, so there was at least one filter between me and making a permanent fool of myself). Just as I didn’t care what anybody thought, I stopped ridiculing myself. My inner critic went away. See what I mean by feeling true love?

Do I miss the love or the fun? It’s a toss-up! But whatever the case, hats off to chemo–I couldn’t have learned these valuable lessons without you. And it’s my dear wish for everyone going through chemo, like you now, dear MBP, that you find the love and fun on your journey, too.

Stay tuned for Part Two next week!

4 thoughts on “Hats Off To What I Miss Most About Chemo

  1. Stephanie, I think you put out there things and thoughts people going through this think but never express. I hope you put these muses into a book. Will be invaluable for others. XO Jan

    1. Thanks so much Jan! It makes me feel so good to know that you find great meaning in these muses. I know I do! Even if it never becomes a book, at least it’s here to help anyone who needs it. Love and great hugs!! xoxo

  2. Dear Steph…I couldn’t agree more with Jan. Your muses have a much bigger purpose than you think! You happen to clam all your readers’ fears. In honor of your friend, MBP, I’ll be wearing my pink wig and goofy goggles to my mom’s house tomorrow to spread the love and have some fun! Love you.

    1. Dear Nuria, You’re precious! These muses have gotten us this far and no telling how far they’ll go! Every one of them is written and read with great love—and for that I am deeply blessed!! Picturing you spreading the love and having fun brings such joy to me!! Wow!! xoxo

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